Jun 19, 2020
Todd Simms received his diagnosis and now has to wait for the next step. The global pandemic has changed things a little.
We will have to wait to hear the next part of the Simms' family story.
If you have a Pheochromocytoma or a Paraganglioma story you would like share, we would love to hear from you.
Jun 12, 2020
Diagnosis Discovery of a Rare Disease
For maybe the first time in the history of the Simms family, cancer has become a very good thing. They finally got a name for the mystery disease that they have been struggling with all this time. pheochromocytoma.
A pheochromocytoma (fee-o-kroe-moe-sy-TOE-muh) is...
Jun 5, 2020
Part of the story you will hear in the episode.
"There were lots of times when his energy levels would, would come and go, and he wouldn't have seen a pattern. I always would say to him, you're in the middle of it. So sometimes you Can't see you're just experiencing and reacting and responding and being and me a bit...
May 22, 2020
In this new mini series, we explore what it's like to live with a rare disease.
The Simms' family will share what life was life before the diagnosis, the process as well as finally getting a diagnosis.
The music in this series is by Grant Boyer Music.
If you have a story to share, we would love to hear...